The IMPACT TEA is a community-built information tool centered around PFIC (Progressive Familial Intrahepatic Cholestasis) – a group of rare genetic disorders that cause a progressive liver disease and can lead to cirrhosis and end-stage liver disease. PFIC is estimated to affect 1 in 50,000-100,000 people worldwide (typically in early childhood) with currently no known cure. This platform aims to educate, build partnerships, identify patient priorities, and pursue treatment research together as a community.

If you are newly diagnosed, welcome to the PFIC family! If you are here to share your experiences with other PFIC families, thank you for being willing to share your story and help others!